Some years ago (between 1998 -2004) the A-T families known at that time were asked to reply to a questionnaire about cancers in the family, in order to try and derive an estimate of the cancer risks of A-T family members. This work was completed and published and researchers Malcolm Taylor and Doug Easton came to talk to us at our Family Days about the results.
Malcolm and Doug would now like to update the cancer information available on the 1160 relatives who were studied at that time. This does not require those involved to do anything further, in terms of providing family information. However, if you may have been one of the people included in the original study, they ask if you would click on the links below and read the two short statements, called ‘Patient notification and Dissent’ and ‘The acceptability of using confidential patient information without consent’. They should both be self-explanatory.
The A-T Society thinks this is a very important study into a topic which it is of great importance to the families of people living with A-T, and we very much hope that you too will support it.
If you have any questions please use the contact details contained on the links above.