We are delighted to be joining forces with Action for A-T and BrAshA-T Ataxia Telangiectasia (the A-T charity in Australia) to fund a new A-T research project. The jointly funded study will plot the natural history of A-T and provide invaluable data to assist with future clinical trials and developing clinical guidance.
A Natural History that is a detailed description of the condition based on extensive data, is a vital document for any rare condition. There is currently no natural history for ataxia-telangiectasia so the Society is delighted to be jointly funding a project to develop one using data from the Nottingham and Papworth clinics. The project is being undertaken by Dr Emily Petley, with the support of Dr William Whitehouse, paediatrician at the Nottingham A-T Centre.
The project will use data gathered over many years by the clinics at Nottingham and Papworth as well as that from research projects such as the CATNAP brain imaging study and the IMAGINA-T lung-imaging study to create a natural history. The UK is the ideal place to carry out this study given the large numbers of people with the condition who have been seen regularly at the two specialist centres over so many years.
William Davis from the A-T Society commented: “While it may not sound the most glamorous of projects, a natural history really is a vital document to support the development of treatments for A-T. It is great that data from the two UK clinics is now being used to create a natural history for A-T. But beyond this, I am particularly delighted by the fact that the project is being funded in partnership with Action for A-T and with BrAshA-T. I hope we will see a lot more of this collaboration in future.”