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New diagnosis?

If you or your child/relative has just been diagnosed with Ataxia-Telangiectasia (A-T) or a variant of A-T, we understand this is a shock and a difficult time for the whole family.

However when you are ready please do contact the Support Team  Kay Atkins (Head of Services) or Anne Murray (Advocacy and Support Manager) on 01582 760733, or email Support

Support Team – Kay Atkins and Anne Murray

In the first instance we will talk through your individual situation and help with a listening ear and lots of support.

We will also be able to answer your questions and give advice and information about A-T. Then we can guide you through the next steps, for example making arrangements for an appointment at one of our A-T specialist clinics.

Please note that all calls and other communication are treated in complete confidence. Our normal working hours are Monday-Friday: 8.30am – 4.30pm.  (Please do leave a message out of these times and we will get back to you).

We do hope you will be in touch soon and we look forward to hearing from you.