Our Support team
Our support team, Kay and Anne, are on hand 5 days a week to help and support families living with A-T. From the shock of the initial diagnosis through to treatment and the challenges of everyday living, they can provide support, advice and advocacy for people with A-T and their family, friends and carers. They can also liaise with and offer advice to professionals.
Kay and Anne can be contacted on 01582 760733.
This charity has been a lifeline to our family since 2007 when our lives were torn apart by this devastating condition. I don't know where we would be without their support, in a much darker place without a doubt. Every cloud has a silver lining and the charity provides hope for a better future, whilst providing much needed valuable support in the meantime. They have enabled us to meet and make lifelong friends with others similarly affected.
Getting a diagnosis
In the UK, all cases of suspected A-T are confirmed by submitting a sample of blood for laboratory tests.
Our Family Support team, Kay and Anne, are on hand to support families through the shock of a new diagnosis of Ataxia-Telangiectasia (A-T) or a variant of A-T.
A-T specialist clinics
There are two A-T specialist clinical centres in the UK, one for children at Nottingham City Hospital and one for adults at Royal Papworth Hospital, Cambridge.
Local health care
Local health care teams have a vital role in maintaining the health and well-being of children and adults with A-T.
Advocacy & support
As well as providing a 'listening ear' we can advocate for you to receive the services that you need.
The A-T Society can offer financial help to people with A-T through our Support Grants System.
Whether you have A-T or you are a parent, relative or carer, talking to others in the same situation can be a great help.
We understand the strain that living with A-T can put on relationships within families and that sometimes extra support is required to help them cope.