About the clinics
There are two A-T specialist clinics in the UK, which are now fully funded by the NHS. They have built up considerable experience and expertise in A-T together with developing better management of the condition. The children’s clinic is based at Nottingham City Hospital and the adult clinic at the Royal Papworth Hospital, Cambridge. The A-T Society was instrumental in setting up and developing both of the centres and continues to work in collaboration with the NHS to constantly review and progress the quality of care for patients. We also arrange appointments at the clinics and fund transport/accommodation costs.
Both clinics offer multidisciplinary medical assessments; at Nottingham there are 6 clinics per year, held over 2 days as an outpatient, where the child would attend soon after diagnosis and be recalled every 2 – 3 years. At Papworth there are individual booked appointments, staying as an inpatient for 3 days/2 nights where the patient would attend soon after diagnosis and be recalled every year.
By seeing good numbers of patients on a regular basis, the specialist centres have built up a knowledge of A-T and how it affects individuals. This is a vital resource in improving our understanding of the condition and how it can best be treated. It is also an essential part of keeping people with A-T ‘well’ in order to maintain the best possible quality of life. Both centres are actively involved in clinical research and have a world-wide reputation as leading centres in the treatment of A-T.
We would encourage a referral to one of these centres as soon as possible after diagnosis. The advice given at each centre is invaluable for the patients health, for example; prevention of infections and to keep them as well as possible, now and in the future. Referrals can either be made through the A-T Society or directly to the relevant centre. If your patient/client lives outside of the UK it may still be possible for them to attend one of these centres, either through the European system or as a private patient, please contact us and we will do our best to help.
To book an appointment through the A-T Society call our ‘Support Team’ Kay Atkins or Anne Murray on 01582 760733 or email support.
Nottingham (Paediatric clinic)
Direct referrals from a GP or Consultant can be made to: Dr Mohnish Suri, A-T Clinic Director, Clinical Genetics, City Hospital, Hucknall Road, Nottingham, NG5 1PB.
Papworth (Adult clinic)
Direct referrals from a GP or Consultant for adults (16 years plus) with A-T or A-T like condition can be made to: Dr Nick Oscroft, Adult A-T Services, Royal Papworth Hospital, Papworth Road, Cambridge Biomedical Campus, Cambridge, CB2 0AY
You can also contact Natasha Everett – Clinc Co-ordinator on 01223 639452 or email Natasha
Royal Papworth A-T Specialist Clinic