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Trustee Vacancy

Trustee Vacancy

(2-4 hours per week, unpaid)


Exciting opportunity to make a difference

The AT Society is the only UK charity making a daily difference to the lives of people with Ataxia Telangiectasia, and those who care for them. We offer extensive emotional and practical support for everyone affected by the disabling and life-limiting condition and invest in cutting-edge research to find a cure and improve treatments.

If you would like to make a positive difference to the lives of children, adults and their families who are affected by a rare health condition, and who face many challenges and barriers every day, this is a fantastic chance to join our passionate team at the AT Society, a small charity with a national remit.

You will be committed to our values and share our vision that every person affected by AT has access to high quality treatment, information, advice and support. You will be able to think strategically and practically about the challenges and opportunities the organisation may face, whilst also providing leadership, scrutiny and support.

The Board normally meet quarterly in person, although throughout the pandemic the meetings have moved to being online and have been more regular, given the increased challenges the pandemic has posed. Your role will be key in supporting our frontline services and research as well as carrying out the normal functions of a trustee, such as ensuring the charity carries out good governance and maintains its core mission. In addition to the statutory duties, you will be asked to use any specific skills, knowledge or experience you have to help the board of trustees reach sound decisions.

Individuals with a good knowledge of the charity sector and/or the health and social care sectors would be an advantage.

Previous Board experience is not necessary, but an understanding of, or a willingness to train in the principles of good governance in the charity sector is essential.

The expected time commitment is approximately 2 – 4 hours per month on average, to include taking part in Board meetings, preparation for meetings, and being involved in occasional projects and Board correspondence.

The Board is particularly interested to hear from candidates from under-represented groups including women, Black and Asian people and people from Ethnic Minorities, LGBTQI people, disabled people and young people.

If this is for you, please click here for the full role description and application details.

Your Privacy

We welcome your interest in working with us here at the AT Society. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it.

We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.

In the event your application is unsuccessful, we will dispose of it confidentially.

For more detailed information on your rights and how we use any data you provide us, please see our privacy policy.