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It is difficult to say Ataxia Telangiectasia, but it is even harder to live with…… We are proud to be […]

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The A-T Clinical Research Meeting (A-TCRC), which is in part organised by the A-T Society, and was due to take […]

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Title: Parenting and Schooling Children with Ataxia Telangiectasia (AT) a Mixed Methods Survey: Exploring Parental Stress, Anxiety, Depression, School Engagement […]

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We are very sad to have to announce that the 2020 Family Weekend and the Clinical Research Conference that were […]

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CORONAVIRUS UPDATED 15/7/20 As the Coronavirus pandemic develops, advice from the government and NHS is changing from day to day. […]

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Some years ago (between 1998 -2004) the A-T families known at that time were asked to reply to a questionnaire […]

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We are delighted to announce that the clinical trial of the drug N-Acetyl-L-Leucine (IB1001) for the treatment of ataxia-telangiectasia (A-T) […]

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On 13th December the A-T Society is holding it’s Christmas jumper day. We are encouraging schools, companies and individuals to […]

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On 12th November the A-T Society launched it’s Christmas Sparkle Draw. The top prize this year is £1,000 in cash […]

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A number of people have asked us what effect Brexit might have on people living with A-T. In particular, there […]

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