Our research strategy

The A-T Society’s new Research Strategy was agreed by the Board at the end of October 2011. Its two key objectives are to develop new and improved treatments and to bring about a cure.  

Priorities 

Finding new and better ways to support these clinical researchers is one of our three priorities for the next few years. These are:

  • Understanding the mechanisms underlying the development of A-T

    There are still huge gaps in our knowledge of how and why A-T develops. Until we understand these it will be very difficult to develop effective treatments.

  • Understanding, treating and preventing lung disease

    Lung disease is a major cause of death amongst people with A-T. However there are many different forms of lung disease and little is known about how it is caused or develops. Progress in preventing or treating lung disease would have a major impact on the quality and length of life of people with A-T.

  • Improving the infrastructure in A-T clinical research

    Clinical research into A-T is fragmented and poorly funded, often depending on clinicians for whom A-T is only part of their work. We aim to support these people and help overcome the administrative and practical barriers they face, as well as encouraging new researchers and new resources into A-T research. We aim to iancrease the amount of A-T research in the UK and more specifically to build a 'hub' of A-T research in Cambridge.

 
Working together 

With a clear strategy agreed, we aim to become more proactive in encouraging research. Rather than waiting for people to apply to us, we want to go out and encourage them to get involved in the research we think needs to happen.

We have already advertised our strategy to researchers round the world and asked them to consider working with us. We are working closely with sister organisations such as the A-T Children’s Project (ATCP) in the USA and Action for A-T and are involved with a number jointly funded research projects.

To see a copy of the strategy, please click on the link below.

Research strategy