Publication date: 17 November 2016
Many people have been moved by Ebony Robinson's story which has been covered on the One Show for BBC Children in Need over the past few weeks. 18-year-old Ebony was the first ever wheelchair-user to ride the Rickshaw Challenge. As well as showing the nation her determination to succeed and live life to the full, she has demonstrated how much children and young adults living with A-T can achieve with the right support.
The A-T Society has many more examples of young people like Ebony who are living with A-T and pushing the boundaries to live life to the full. Young adults like Becky who has just been awarded the Inspire Scholarship by her local gym, Alecia who has recently started a professional cookery college course and Charlie who plays for a Powerchair Football Club and has high hopes of joining the England squad.
You can read their inspirational stories in our Living with A-T section on the website. All are finding their own ways to fulfil their dreams and overcome the challenges that living with A-T brings.
In November 2015 they, along with other young adults with A-T, came together to help create a film, People like me. In the film, the young people talk candidly on camera about their lives, experiences and the importance of meeting up with other people with A-T – ‘people like me’. Created by film maker, Sharon Woodward, the film gives a powerful insight into what it’s really like to live with Ataxia-Telangiectasia (A-T).