New diagnosis

If you or your child/relative has just been diagnosed with Ataxia-Telangiectasia (A-T) or a variant of A-T, we understand this is a shock and a difficult time for the whole family.

However when you are ready please do contact the 'Support Team'  Kay Atkins (Family Support Manager) or Anne Murray (Family Support Co-ordinator) on 01582 760733, or email Support

In the first instance we will talk through your individual situation and help with a listening ear and lots of support.

We will also be able to answer your questions and give advice and information about A-T. Then we can guide you through the next steps, for example making arrangements for an appointment at one of our A-T specialist clinics.

Please note that all calls and other communication are treated in complete confidence. Our normal working hours are Monday-Friday: 8.30am - 4.30pm.  (Please do leave a message out of these times and we will get back to you).

We do hope you will be in touch soon and we look forward to hearing from you.