Living with A-T

We work with many people and families affected by A-T.

Some of them have shared their stories to help increase awareness and understanding of the condition, and how they live their lives.  You can find out more about them in the following pages:

Becky (Young Adult who has classic A-T) 

Alecia (Young Adult who has classic A-T)

Amy  (Young adult who has a mild form of A-T)

Rachel Young Adult who has classic A-T)

Charlie (17 year old boy who has classic A-T)

Justine & Stefan  (Parents to Brooke who has classic A-T)

Merry  (11 year old girl who has classic A-T)



In November 2015 a group of young Adults with A-T came together to help create a film - 'People like me'. They talk candidly on camera about their lives, experiences and the importance of meeting up with other people with A-T – ‘people like me’. Created by film maker, Sharon Woodward, the film gives a powerful insight into what it’s really like to live with Ataxia-Telangiectasia (A-T).