LINKS
Primary Immunodeficiency Association www.pia.org.uk
A national support group and registered charity which represents the interests of those affected by immunodeficiences and has a range of useful information leaflets.
The Neurological Alliance www.neural.org.uk
The Neurological Alliance is the collective voice of a range of charities and organisations in England, campaigning for better services for people with a neurological condition.
Neurological Alliance of Scotland www.scottishneurological.org.uk
Genetic Alliance UK www.geneticalliance.org.uk
Genetic AllianceUK is a well-established national charity working with patient groups, charities, individuals and families affected by genetic conditions. Genetic Alliance UK has over 130 member organisations, representing rare genetic conditions such as A-T and Alstrom syndrome as well as more complex genetic conditions such as cancer and heart disease.
Ataxia UK www.ataxia.org.uk
Ataxia UK deals with all other ataxias such as Friedreich's Ataxia and Cerebellar Ataxia, supporting people affected by ataxia and funding research into causes and potential treatments.
Association of Medical Research Charities www.amrc.org.uk
The A-T Society is a member of AMRC, which is an organisation of the leading medical and health research charities in the UK.
A-T ORGANISATIONS ABROAD
- A-T Children's Project www.atcp.org
A charity registered in the United States and Canada, the A-T Childrens Project raises funds for research, scientific conferences and a clinical centre, aimed at finding a cure or life-improving therapies for people with A-T.
- The Association for Fighting A-T Disease www.a-t.org.il
an organisation based in Israel
- BrAshA-T www.brashat.org.au/research.html
BrAshA-T is an Australian charity which supports families affected by A-T, and raises funds for research.
GENERAL SUPPORT AND INFORMATION
- Directgov www.direct.gov.uk/disability
For help with benefits, disability rights, education and more.
- Contact a Family www.cafamily.org.uk
A UK wide charity providing advice, information and support to parents of all disabled children.
- Carers UK www.carersuk.org
An organisation which aims to improve carers' lives through research, information provision and campaigning.
- Carers Allowance www.direct.gov.uk
Information about Carers Allowance, a benefit to help people who look after someone who is disabled.
Worldwide A-T Patient Support Groups
The Society is also in contact with:
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