Ataxia-Telangiectasia (“A-T”) is a rare, neurodegenerative and progressive condition which starts in early childhood causing severe disability and premature death. It affects many parts of the body robbing the child of his/her independence. A wheelchair is needed usually by the age of ten.
The A-T Society is a national charity, registration number 1105528. Its objective is to find a cure or treatment for A-T but it is also committed to supporting families affected by the condition as well as improving quality and length of life through our two specialist A-T clinics.
In order to maintain and develop our work we rely heavily on the generosity of our supporters. The rarity of the condition means we do not enjoy widespread appeal but the needs of our children are great. This is why we need your help!
No donation is too small, after all pennies lead to pounds! Thank you.
If you are a parent whose child has recently been diagnosed with A-T you will find plenty of information on this website to help you.
It can be difficult to cope on a practical and emotional level. We can offer you advice and support so please get in touch.
Contact:
Calling all Facebook users, why not visit our Facebook page to find out all the latest from our fundraisers. Don’t forget to tell us your news and share your stories and photos with us. You can also plan and announce upcoming A-T Society events and fundraising ideas. Visit www.facebook.com/home.php?#!/group.php?gid=62727431525&ref=ts
About this website
This website is updated every three months.
We welcome your comments and feedback – contact the A-T Society
Copyright belongs to the A-T Society.
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Survey of patients’ experiences
Rare Disease UK, of which the A-T Society is a member, is carrying out a survey to gather evidence about the experience of people affected by rare conditions with public services. This information is a vital tool to help us put pressure on politicians and service managers to ensure that people affected by conditions like A-T get access to properly funded and co-ordinated health, information and support services.
If you live in the UK and have A-T (or another rare disease) or care for someone that does, please click on the link below and take a few minutes to tell them about your experiences. The deadline for doing this is 31 July.
Click here to go to survey>>
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