How we can help

The A-T Society is here to support anyone affected by Ataxia-Telangiectasia (A-T) or a variant of A-T and the people who care for them.

One of the Society's most important aims is to fund and promote research to find better treatments and ultimately a 'cure' for A-T.

However the quality of life for children and adults who have A-T in the 'here and now' is just as important.

Kay Atkins - Family Support Worker

Kay Atkins is our Family Support Worker, she has over ten years of experience in working with A-T and is available to support with advice and to act as an advocate for people with A-T and their family, friends and carers. Kay can also offer advice to professionals who are caring for someone with A-T.

Here are some examples of how Kay can help

Help with diagnosis: Getting a diagnosis / Newly diagnosed
Arranging appointments at one of our A-T specialist centres
Accessing the services you need, for example, education, home adaptations, social services, equipment etc. Advocacy & support
Liaison with Doctors and other medical professionals, to offer them information and advice about A-T Advocacy & support
Liaison with Schools and Further Education settings Advocacy & support
Help applying for benefits Advocacy & support
Referral to our Counsellor, Helen Hart Counsellor
Written information about A-T Publications
Application for a Support grant
Respite care breaks Support grant
Putting you in touch with other families/people with A-T Meeting others
Keeping you up to date with events such as our Family Weekends

You can contact Kay on 01582 760733, or email Kay (Kay's normal working hours are Mon-Fri: 8.30am - 4.30pm). Please note that all communication is treated in complete confidence.