How we can help
The A-T Society is here to support anyone affected by Ataxia-Telangiectasia (A-T) or a variant of A-T and the people who care for them.
One of the Society's most important aims is to fund and promote research to find better treatments and ultimately a 'cure' for A-T.
However the quality of life for children and adults who have A-T in the 'here and now' is just as important.
Kay Atkins - Family Support Worker
Kay Atkins is our Family Support Worker, she has over ten years of experience in working with A-T and is available to support with advice and to act as an advocate for people with A-T and their family, friends and carers. Kay can also offer advice to professionals who are caring for someone with A-T.
Here are some examples of how Kay can help
- Help with diagnosis: Getting a diagnosis / Newly diagnosed
- Arranging appointments at one of our A-T specialist centres
- Accessing the services you need, for example, education, home adaptations, social services, equipment etc. Advocacy & support
- Liaison with Doctors and other medical professionals, to offer them information and advice about A-T Advocacy & support
- Liaison with Schools and Further Education settings Advocacy & support
- Help applying for benefits Advocacy & support
- Referral to our Counsellor, Helen Hart Counsellor
- Written information about A-T Publications
- Application for a Support grant
- Respite care breaks Support grant
- Putting you in touch with other families/people with A-T Meeting others
- Keeping you up to date with events such as our Family Weekends
You can contact Kay on 01582 760733, or email Kay (Kay's normal working hours are Mon-Fri: 8.30am - 4.30pm). Please note that all communication is treated in complete confidence.