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Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

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Pictore of research doing tests in lab

Gene-editing advance: implications for A-T

There has been a lot of media coverage over the last couple of days of the news that scientists in Oregon have for the first time managed to edit the DNA of a human embryo (effectively a fertilised egg) to remove a mutation which if left would give rise to a serious genetic condition. In this article, we explore the implications of this advance for people living with A-T.

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Image of EryDex System red-cell uploader

Delay to the ATTeST trial

As some people will be aware, there has been a delay in recruiting people onto the ATTeST trial of the EryDex system, which was due to start at Nottingham earlier this year. The US Food and Drug Agency has put a temporary stop on recruitment to the trial allowing only patients already enrolled to continue treatment.

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    Brighton Marathon 2018

    Places are now available to join the A-Team at the Brighton Marathon on Sunday 15th April 2018. The Brighton Marathon is the second largest marathon in the UK. With fresh sea air to invigorate you and a flat and fast route that takes in the stunning coastline, this race is a perfect choice for seasoned runners and beginners alike. We have a limited number of places available and we’d also be pleased to welcome own-place runners to our Brighton Marathon team. By joining us you will have all the motivation you need knowing that every pound you raise will really help families facing the daily challenges that living with A-T brings. Step forward and sign up - we'd love to have you on our team.

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    London Joy Singers Charity Concert

    The London Joy Singers (LJS) is a community choir based in South East London who sing traditional and contemporary music in a gospel style. For an uplifting evening head to All Saints Church in Blackheath on March 10th and hear them perform in support of the A-T Society.

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