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The A-T Society provides information and support to the health and social care professionals who work with people affected by A-T. Given the low prevalence of A-T, with an estimated 200 cases in the UK, most professionals are unlikely to know much if anything at all about A-T when a person first comes to or is referred to them. Furthermore, they are not likely to see more than one patient, unless they come across a case where more than one person in a family is affected. People with A-T should in most cases be referred to one of the two national clinics, to Nottingham if they are children or to Papworth if they are adults. Click here for details of Clinics. After attending one of the clinics, patients and the referring doctor will receive a letter with details of findings and recommended treatments and follow-up, within about 8 weeks. The multi-disciplinary teams at the clinics are also available to answer queries from doctors and other health professionals about any aspect of A-T care. For information on how to contact the clinic, please call the Family Support Worker, Kay Atkins, on 01582 760733 or e-mail kay@atsociety.org.uk. The Society also has access to the services of an experienced physiotherapist and occupational therapist, who will be happy to answer queries about the specific needs of people with A-T. To speak to one of these, please contact Kay (details above). For information about other ways that we can help, please go to the Help and Support page. The Society provides a range of information booklets. Click here for details of Publications. The most comprehensive of these is the Handbook for Families and Caregivers, published by permission of the A-T Children’s Project in America. |
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