How we can help you
One of the A-T Society’s key roles is to provide information and support to families and to the health, education and social care professionals who are working with people with A-T and their families.
Ataxia-Telangiectasia (A-T) is a very rare condition with an estimated 200 cases in the UK. Most professionals will have limited knowledge or be unaware of the condition when a person is referred to them. Infact, they may not see more than one person with A-T during their professional career unless they are involved with a family where siblings are affected.
Our family support team, Kay Atkins and Anne Murray, have in-depth knowledge of the condition gained over the years from working with A-T families and healthcare and education professionals.
They can assist in the following ways:
- Providing information about the condition and answering any questions
- Arranging referrals to one of our A-T specialist clinics
- Liaising with our specialist doctors, therapists and healthcare workers
- Attending meetings and acting as an advocate on behalf of the person with A-T
- Giving talks or training about the condition
- Financial support for families for equipment and services, through our support grants system
For further help and information please contact our ‘Support Team’ Kay Atkins or Anne Murray on 01582 760733 or email support.