A-T specialist centres
There are two A-T specialist centres in the UK, which are now fully funded by the NHS and have built up considerable experience and expertise in A-T together with developing better management of the condition. The children's centre is based at Nottingham City Hospital and the adult centre is based at Papworth Hospital, Cambridge. The A-T Society was instrumental in setting up and developing both centres and continues to work in collaboration with the NHS to constantly review and progress the quality of care for patients. We also arrange appointments at the centres and fund transport and accommodation costs.
Both centres offer multidiciplinary medical assessments; at Nottingham (the children's centre) there are 6 clinics per year (held over 2 days as an outpatient) where your child would attend soon after diagnosis and be recalled every 2 years. At Papworth there are individual booked appointments (staying as an inpatient for 2 nights and 3 days) where you would attend soon after diagnosis and be recalled every year.
We would encourage you to attend one of these centres as soon as you feel able after diagnosis. The advice given at each centre is invaluable for you/your child's health, for example; prevention of infections and to keep as well as possible, now and in the future.
If you live outside of the UK it may still be possible for you to attend one of these centres, either through the European system or as a private patient, please contact us and we will do our best to help.
For further information or to book an appointment at one of the centres please contact Kay on 01582 760733 or email Kay
+44 (0) 1582 760733