Research
The Society supports research into A-T principally through funding a researcher based at the University of Birmingham, under the direction of Professor Malcolm Taylor who is a world renowned expert in A-T. Where appropriate the Society provides funding to enable UK researchers to attend overseas conferences relevant to A-T.
Support for Families
Amongst other things we:
- Provide information on A-T
- Organise an annual Family Day
- Make grants for equipment such as computers, wheelchairs etc.
- Produce a twice-yearly Newsletter 'A-T News'
- Fund a national A-T Clinic at Nottingham City Hospital
- Have a counsellor - Helen Hart
- Have a family support worker - Kay Atkins
(Helen our counsellor with Kay our family support worker)
Kay's Role is to offer support to families in whatever way she can, for instance advocacy, practical advice on equipment and benefits. Helen offers counselling support by telephone to people with A-T, their families and anybody affected in some way by A-T.
Kay and Helen can be contacted on 01582 760733.
Awareness
We have produced 9 information leaflets and 2 videos on various aspects of A-T, aimed at both families and professionals and we act as a focal point for enquires about A-T.