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Calendar 2015

The first A-T Society Calendar is available now. We have limited numbers, so order yours very soon!

It was created with the help of 20 Sqn. Royal Logistics Corps and the amazing children and families who live with A-T.

All proceeds of the Calendar will go to medical research into treatments and a cure for Ataxia-Telangiectasia.

We love it and we hope you will too!

Flu Vaccination Guidance

It is strongly recommended that everyone with A-T and their families receive a flu vaccination each year.

Our specialist Immunologists have given the following guidance:

1. People with A-T should all receive the inactivated flu vaccine by injection provided they are more than 6 months of age. They should not receive the nasal live vaccine.

This is based on the recommendation that all immunocompromised individuals should have the killed vaccine.

While some A-T patients are not particularly immuno-compromised, it is easier to have a general rule for all.

2. Household contacts and school contacts can receive the live nasal vaccine provided they are more than two years of age (the nasal vaccine is not licensed for under twos; they can of course have the injectable vaccine after 6 months of age).

The A-T patient does not need to be kept away from them or kept away from school.

3. The same rules apply for adults and children.

This advice is based on the Infectious Diseases Society of America (IDSA) guidelines published earlier this year. Our A-T Specialist Immunologist, Dr Graham Davis, was part of the expert panel which wrote the guidance and we strongly recommend that the guidance is followed by all A-T families.

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Image of William's blog

  A-T the front line

In a new approach to talking about our work, our chief executive William has started a blog. This is a page where from time to time he posts informal articles about some of the things he has been doing, issues he has been thinking about or other items that have caught his eye. Click on the image above to visit the blog.

The idea is to give an idea of some of the things which are going on in the background but aren't ready to become full website items and also to allow a more personal view. It's an experiment, so let us know what you think.

New diagnosis