Skip Content

Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

Latest news

Read all news

A game of two halves

Gorgeous twins, Broghan and Brae Sewell, are living examples of just how indiscriminate A-T is.

They both love cycling, their Playstation and football. But only Broghan has been selected as a potential star - Chelsea FC have signed him up to their under eights team. The other twin, Brae, has Ataxia-Telangiectasia.

Our new film highlights the conflict of emotions experienced by A-T families - their courage and heartache. It shows the family grappling with the different paths their sons lives will take.

Read More
Pictore of research doing tests in lab

Gene-editing advance: implications for A-T

There has been a lot of media coverage over the last couple of days of the news that scientists in Oregon have for the first time managed to edit the DNA of a human embryo (effectively a fertilised egg) to remove a mutation which if left would give rise to a serious genetic condition. In this article, we explore the implications of this advance for people living with A-T.

Read More

Events

  • event image

    Caritas Harmony Choir - tickets on sale now!

    Winners of two significant choral awards at The Bedfordshire Festival of Music in 2016, Caritas Harmony Choir will be performing this October in support of the A-T Society. Combining a love of music with support for good causes, the ladies will be performing a medley of popular songs from musicals such as Les Miserables, Kiss Me Kate, South Pacific and Chitty Chitty Bang Bang, as well as popular numbers and classical pieces. The concert will be held at Rothamsted Conference Centre, West Common, Harpenden on Saturday 21st October at 7pm. Tickets are on sale now - £10 adult ticket (children under 12 years - free).

    Read More
  • event image

    Adult Activity Break

    Our adult activity weekend will take place on Friday 8th – Monday 11th September at Bendrigg Trust in Cumbria. This is a great opportunity to get away for a few days, take part a range of exciting activities, and relax with people of a similar age in the evening. The weekend is open to anyone age 16 plus (with A-T or an A-T Like Condition). Booking forms have been sent out (also available online) and need to be returned by 28th June. Places are limited so will be allocated on a first come first served basis so please get in touch as soon as possible if you’d like to come.

    Read More