Skip Content

Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

Latest news

Read all news

A game of two halves

Gorgeous twins, Broghan and Brae Sewell, are living examples of just how indiscriminate A-T is.

They both love cycling, their Playstation and football. But only Broghan has been selected as a potential star - Chelsea FC have signed him up to their under eights team. The other twin, Brae, has Ataxia-Telangiectasia.

Our new film highlights the conflict of emotions experienced by A-T families - their courage and heartache. It shows the family grappling with the different paths their sons lives will take.

Read More
Pictore of research doing tests in lab

Gene-editing advance: implications for A-T

There has been a lot of media coverage over the last couple of days of the news that scientists in Oregon have for the first time managed to edit the DNA of a human embryo (effectively a fertilised egg) to remove a mutation which if left would give rise to a serious genetic condition. In this article, we explore the implications of this advance for people living with A-T.

Read More

Events

  • event image

    Caritas Harmony Choir - tickets on sale now!

    Winners of two significant choral awards at The Bedfordshire Festival of Music in 2016, Caritas Harmony Choir will be performing this October in support of the A-T Society. Combining a love of music with support for good causes, the ladies will be performing a medley of popular songs from musicals such as Les Miserables, Kiss Me Kate, South Pacific and Chitty Chitty Bang Bang, as well as popular numbers and classical pieces. The concert will be held at Rothamsted Conference Centre, West Common, Harpenden on Saturday 21st October at 7pm. Tickets are on sale now - £10 adult ticket (children under 12 years - free).

    Read More
  • event image

    Family Weekend - 14th & 15th October

    We are so looking forward to welcoming many of our families at our annual A-T family weekend at Radisson Blu Hotel, Stansted Airport. We're delighted to announce that the event is fully booked with over 200 people attending. Whilst the agenda is action packed, there will be plenty of time for everyone to catch up with old friends and make some new ones too. If you’re attending you will have received an information pack in the post with everything you need to know so don't forget to bring this with you. Click on the 'read more' button below for a quick guide to all the essential information you'll need for the A-T family weekend.

    Read More