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Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

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Pictore of research doing tests in lab

Gene-editing advance: implications for A-T

There has been a lot of media coverage over the last couple of days of the news that scientists in Oregon have for the first time managed to edit the DNA of a human embryo (effectively a fertilised egg) to remove a mutation which if left would give rise to a serious genetic condition. In this article, we explore the implications of this advance for people living with A-T.

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Image of EryDex System red-cell uploader

Delay to the ATTeST trial

As some people will be aware, there has been a delay in recruiting people onto the ATTeST trial of the EryDex system, which was due to start at Nottingham earlier this year. The US Food and Drug Agency has put a temporary stop on recruitment to the trial allowing only patients already enrolled to continue treatment.

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Events

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    Ride London 100 Sunday 25 July 2018

    Celebrating the legacy for cycling created by the London 2012 Olympic and Paralympic Games, Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park, then follows a 100-mile route on closed roads through the capital and into Surrey’s stunning countryside.The 2018 ballot is now closed but you can still enter with one of our charity places for a £50 registration fee and minimum sponsorship of just £350. Sign up today help bring hope of brighter future for children and adults with A-T and their families.

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    London Joy Singers Charity Concert

    The London Joy Singers (LJS) is a community choir based in South East London who sing traditional and contemporary music in a gospel style. For an uplifting evening head to All Saints Church in Blackheath on March 10th and hear them perform in support of the A-T Society.

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