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Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

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Research into A-T and diabetes - we need your help

Adults with A-T are being asked to take part in an exciting research project at the University of Dundee. The project, investigating the link between A-T, diabetes and fatty liver aims both to improve treatment of diabetes in A-T and throw light on metabolic aspects of the condition.

Participants, who need to be non-diabetic, will take two known and entirely safe medicines over a 6 month period. In return they will get 3 fully-funded trips to a comfortable hotel in Dundee, with a carer, and the knowledge they are helping improve our understanding and treatment of A-T.

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Disabled housing crisis gathering momentum

The housing problems facing disabled people is gathering momentum with the housing crisis receiving press coverage over the past couple of weeks. Last week, The Guardian newspaper featured the dire problems faced by many families living with A-T in getting suitable housing. The report featured a number of cases where parents have been left carrying grown children up and down stairs and even injuring themselves as councils and housing associations refuse to accept responsibility to adapt properties. A-T Society chief executive William Davis said ‘This housing crisis for people with disabilities is getting worse every day and our support team spend more and more time fighting to get families homes where they can live with dignity.. We will be working with other organisations to go on highlighting the problem.’


This week the Equality and Human Rights Commission invited disabled people and organisations to take part in their survey to help them understand whether the availability of accessible and adaptable housing and the support services around it fulfils disabled people’s rights to live independently.

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Events

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    Join the A-Team at the Prudential RideLondon100 cycle race

    Be part of the A-Team taking part in the Prudential RideLondon-Surrey 100 cycle challenge on Sunday 30th July. Ride the 2012 Olympic race route, cycle past some of London's iconic landmarks before heading out into the beautiful Surrey countryside. With leg-testing climbs and a route made famous by the world’s best cyclists at the London 2012 Olympics, it's a truly spectacular event for all involved. The 100 mile ride finishes on The Mall in central London.

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    Last call to join our exhilarating champagne cycle tour

    Our 350 mile tour starts from St Albans Cathedral on Wednesday 10th May with a 100 mile ride to Portsmouth. From there the team sail to Caen and work their way across the rolling French countryside and WW2 battlefields to their destination in the fizzing Champagne capital, Epernay. Cyclists taking part in this event will get to ride part of the Tour de France route and follow in the tracks of yellow jersey cyclists like Bradley Wiggins, Chris Froome and Fabian Cancellara. All travel, accommodation, food and mechanical support are taken care of. Sign up today and give young people with A-T hope for the future.

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