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Ataxia-Telangiectasia (A-T) is a progressive genetic condition which causes severe disability and is life-limiting.

The A-T Society supports families to live their lives to the full and funds medical research.

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Research into A-T and diabetes - we need your help

Adults with A-T are being asked to take part in an exciting research project at the University of Dundee. The project, investigating the link between A-T, diabetes and fatty liver aims both to improve treatment of diabetes in A-T and throw light on metabolic aspects of the condition.

Participants, who need to be non-diabetic, will take two known and entirely safe medicines over a 6 month period. In return they will get 3 fully-funded trips to a comfortable hotel in Dundee, with a carer, and the knowledge they are helping improve our understanding and treatment of A-T.

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A-T Society interviewed by The Guardian newspaper about housing crisis

The dire problems faced by many families living with A-T in getting suitable housing was highlighted today by the Guardian newspaper. The report features a number of cases where parents have been left carrying grown children up and down stairs and even injuring themselves as councils and housing associations refuse to accept responsibility to adapt properties. A-T Society chief executive William Davis says ‘This housing crisis for people with disabilities is getting worse every day and our support team spend more and more time fighting to get families homes where they can live with dignity. It’s great that the Guardian has chosen to highlight this issue. Let’s hope that it kick-starts some change. We will be working with other organisations to go on highlighting the problem.’

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Events

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    Prudential RideLondon100 cycle race

    Join 25,000 cyclists taking part in the the Prudential RideLondon-Surrey 100 cycle challenge on Sunday 30th July. Ride the 2012 Olympic race route, cycle past some of London's iconic landmarks before heading out into the beautiful Surrey countryside. With leg-testing climbs and a route made famous by the world’s best cyclists at the London 2012 Olympics, it's a truly spectacular event for all involved. The 100 mile ride finishes on The Mall in central London.

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    Vive le vèlo champagne cycle tour

    If an intense, exhilarating and rewarding cycling experience is at the top of your list, then why not sign up for our new cycle challenge? Starting from St Albans Cathedral on Wednesday 10th May 2017, cyclists will pedal a total of 346 miles over 4 days to the finish line in Epernay, the Champagne capital of France. Why not challenge yourself and give young people with A-T hope for the future.

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